Support for the “Endometriosis Stories” Project
One emergent theme has always resonated throughout the global endometriosis community: women with this disease want their voices heard. They want to share their stories, perspectives, frustrations and successes. They want to engage in the cathartic process of expressing their intangible - but very real - pain. Above all, they want to connect with others who understand.
While there are many excellent books on the disease available, none give rise to the voice of those who know endometriosis best – the women who live with it every day. Having been involved in the genesis of many publications about endometriosis over the years, it has always been clear to me that this crucial component has never been fully addressed. With the initiation of the ‘Endometriosis Stories’ project, a real and unique opportunity exists as never before for those who persevere - in spite of the disease - to tell the world their experiences, in their own words.
I am delighted to lend my voice to this important endeavor, and I invite others to do the same. Share your experience, tell your story. Your experiences will encourage, motivate and help others. Together, we can learn from one another. Our time has come to speak up, speak out and be heard. Join author Jessica Howell on this journey of hope.
-Heather C. Guidone, AORN Cert.
Surgical Program Director, Center for Endometriosis Care
Executive Board Member, Endometriosis Research Center
Consultant, Endometriosis Foundation of America
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